It has been so long from the last time I posted not even sure what the last post was about :) life is not the easiest for us but things have gotten simpler.Not too long ago Adriana had her broviac replaced because she outgrew the line
She had it since she was 7 months and it was a baby line, spaghetti size untilled now.She has a bigger one on the other side of her chest now.All went well and she did great, of course it caught us all by surprise.Adriana continues to gain weight at a good rate monthly andhl her GI continues to come down on her TPN.She continues to increase in formula and not dump at All.She is now completely off of pregestimil and on full strenght pediasure.She is now at 43 MP/ grand runs for 20 hrs a day.Her goal for full feeds and no TPN is 60, we are close and getting there slowly.Her GI feels she absorbs about 70-80% of what goes in and that she will do just fine without transplant.As she is about 2/3rds of the way there with her gtube feeds.Adriana talks alot and is a very happy social little girl.She is now haveing her IEP meeting ans she reaches her 3rd birthday is March.That will tell us whether she needs help in certain areas and what would be best for her so she will be prepared for kindergarden.She has grown up so fast and trully is amazing in all ways, she has beat all odds and continues to thrive.She is also now eating little bites of certain foods she wants.She loves ice cream cones, chocolate, and coke all the no Nos for a short gut kid but she does tastes them not too much, she will tell me she wants to eat and will pick at her food and eat some.