Sunday, October 11, 2009

I cam home for the weekend, as you know Adriana will be discharged Monday. That is the plan I think I am doing very will with all of my learning to take care of her. I get the hang of all the regular baby stuff and I think I have almost conquered doing the pumps and tubing as well. So here is the scoop Adriana does not tolerate being off her HA so I will be taking home an extra pump for that reason. The home pharmacy will give me 2 TPN pumps and 1 lipid as well as 1 feeding pump. That's a lot of things, plus all the supplies and ostomy supplies too, oh and broviac. Wow, so that is the reason I decided to come home for the weekend. To get everything together since Adriana's room is a mess and need to get things organized. I also have to buy her stroller, some diapers, baby wipes, one of those white plastic dressers well 2, 1 for supplies and other for her clothes. I also need to get a diaper bag for me to carry with me which I do not have yet and some other little things. Her Dad and I are both so excited that she finally will be coming home. Adriana is now getting omegaven and her second bag was hung last night. Things should get better for her now, even though I know the first few weeks her bili will go up and then come down and her color will come back. I can't wait to see that happen. Well we do have to stay locally for a few days just in case anything were to happen, and I think until our appointment which they will tell me all of this on Monday. I am so excited we will finally have our little girl home after spending 7 months in the hospital. She has never come home since and this will be the first time. I might now even know what to do, I will be so excited with her home. I know flu season is here so we might not be taking her so much right now. The only medication we will be taking her home with is her thyroid medicine which she gets orally. Then tpn/omegaven and her NG tube for her feedings. She is taking pregestimil since my breast milk ran out but right now they decided to stop her feeds because she started to dump. They will most likely start them back up for Monday. She is getting very little but every little milk counts. So like I promised the pictures This is Adriana's new crib in StanfordAdriana after her long trip from Children's in Oakland to Stanford. Adriana's 2nd day at Stanford playing with her favorite toyYes that's Adriana with her summer bow the flower is bigger than her headAdriana after her bath, she like her pink lady bug robe