long day.....

Yesterday was a very long and over welming day for Adriana and me too of course. She had a upper GI done yesterday and things look good. They just wanted to see the first part of the small and it looks fine nothing wrong. From there we went to clinic and that went pretty well. Adriana is not getting 45% of her calories from her milk and the other 55% from her tpn. She is no longer tpn dependent but of course still needs it. She is gaining at a good rate, not too fast but of course just enought for them to be happy. She will now be cycled off her tpn for 6 hours now she was 4. I will keep increasing her feeds 1cc a week, it was going up 2 times a week 1 cc each but she has reached a number and kinda needs to slow down. Her gi told me to keep increasing but lets give her gut a break and do it a little slower, he is sure she will continue to advance. From clinic she went to see the surgeon he explained the procedure, whe he would do and how long it would take. He was a very friendly surgeon the only one she has had was not at all. This one was very nice and even spoke to her and made her smile. I was not able to set a date for surgery since we were running late and the coordinator for the surgeries was busy helping some one else. I was told she would call me and then we would get a date. Fom there we took our long drive home and of course it was bath time for her and dressing change. By the time I finished all of that it was just about time to connect her and put her down to bed. She fell asleep quick there was no playing in her crib this time. Adriana is doing well in everything, she is starting to stand. She is not standing holding onto things but for a very short period of time before she feels like sitting. We are working on it with her and her chubby thighs are getting stronger. She also says mama and papa pf course, nothing else but babbles as if she was haveing a conversation with you. Nohting else with her for now, our goal is to get her tpn down ro 12 hours and eventually little by little get rid of it of course. Adriana will be getting a mickey placed, the surgeon told me she will come right out of surgery with one.