Adriana continues to do well on her feeds, through her NG tube. She still continues to be on 1cc an hour for 24 hours. Hopefully this week we will bump her up to 2 and see what happens. If Adriana can tolerate her feeds going up without dumping then we will be looking at a gt tube soon. How soon I am not sure but it will be something we will start to think about. It all depends what her GI doctor says. I am not sure how her bili is right now but at our last GI app it was down to 4.7 which was almost 1 month ago. We will have her blood drawn on the 24 of Feb and lets see how low it is not. She ocntinues to be on TPN 24 hours because of her sugars dropping. We still have no answer as to why they drop but we will see her endricin this week and they might make her come to day clinic and stop her TPN and draw her blood when her sugars are low to see what is going on. The Ng tube does not seem to come out anymore, well of course I have to almost retape it every day. She does gag a lot with the tube in her nose but it's the only way to get food into her belly right now. She is almost 18 pounds and growing, her color is much better, not yellow at all, her eyes are very little she looks like a totally different baby. I am enjoying her a lot , the only things I dont enjoy is she wakes up ever night at 12 am and wants to play. She will scream untill I get up and get her out of her crib. Which she will not go back to sleep untill 3 am, thats what I call crazy. Adriana will be 11 months in a few days and almost a year old. Can you believe it, she cannot stand or crawl but is almost sitting. She loves cartoons and to play and of course her dad is her world.
Adriana sitting
Adriana was in her tub of course it was bath time
She is nothing but cheeks and smiles
She loves pictures especially of her
This is her real skin color, no more yellow
Adriana and her dad. don't they look like tourists?
On March 6,2009 Adriana came into this world weighing in at 1pd 10oz 13 inch long. She was doing so well for being so small. No oxygen or any kind of help. At 2 weeks of life she got NEC, she had 2 surgeries and was diagnosed with short gut. She only has 45 cm of small and no large. She has been faced with many complications along this journey but together we will continue. Soon Adriana will be getting on omegaven and on her way to a much healthier life.