Very long time no post...wow I cant remember when. Adriana is getting over a really bad cough..She is starting to feel much better and my sleep has been getting better of course. She has had this for a little over a week now but its almost gone. She did take a visit to the ER the other day and they started Iv fluids on her since she had been vomiting alot. She did have high pancreas numbers so she was admitted. We were in for 2 nights and were free to go home after that. She still vomits but not as much, not exactly sure why she continues to vomit If I have not messed with her feeds or anything. She is on 23ccs cont, she has gotten up to 25ccs and had been doing fine but with the vomiting I decided to bump her back down for now. Hopefully once this bacteria/cold is over I can get her back up to 25. Lets see how things continue to go with her, She enjoys drinking water..maybe not a whole ton but is drinking and not chocking. Other than that there is nothing new with her.. she hasnt had any line infections or anything else.
Halloween is coming up and she will be a pink panther and will be going trick o treating this year. Adriana came home from the hospital last year on Oct 12 she has officially been home for a year now. that of course means a year woth of line ocnnections for me and dressing changes as well as bag changes. Wow it has been a whole year and Im still not crazy. Never thought it would be possible the day she was discharged I was scared to take her home even tho I had been dying to take her home. She is still here and doing good, she has not had many line infections and is only on her second line which her Gi told me she is doing great. A year ago she could not tolerate any feeds and now she can tolerate 25ccs cont so far. I am sure One day she will be TPN free but I am not sure how soon that will be. She has also been on omegaven for a year as well and is doing great. I am sure omegaven is what has helped her get this far.. I am not sure where she would have been right now if she had never gotten omegaven.....
Adriana just hours after birth
Adriana at birth 1pd 10 oz
Adriana before omegaven
Adriana on omegaven for 5 months
Pink panther
Adriana before gt tube
on her way out the door
About Me
- Adriana's journey with short gut
- On March 6,2009 Adriana came into this world weighing in at 1pd 10oz 13 inch long. She was doing so well for being so small. No oxygen or any kind of help. At 2 weeks of life she got NEC, she had 2 surgeries and was diagnosed with short gut. She only has 45 cm of small and no large. She has been faced with many complications along this journey but together we will continue. Soon Adriana will be getting on omegaven and on her way to a much healthier life.