I have been staying with Adriana is Stanford since Tuesday. I came home last night to take a little break but hopefully will be going back today or tomorrow to spend the week with her. She is doing very well, and it's just to see what the plans are for her. Right now Adriana is being evaluated for a transplant, which does not mean she needs it right now it's a just in case thing. The transplant doctor feels it is a good idea to evaluate her right now that she is doing good, just in case down the road she gets sick and she needs a transplant. All they would do is add her to the list because all of the test have been done. I had to make it clear to all of the doctors and team that came in with me that we are not there for transplant. We are there to get omegaven for her and see what happens. Adriana has had some lab work done on her blood, and has her stool checked daily. In the stool they are checking to see if she is absorbing all of her calories from her milk or just dumping it. The good news is that she is absorbing all of her calories from her milk. She is only getting 2cc's ever hour continuously right now but is doing very well with it. She is only been putting about 74cc's from her ostomy daily. The GI doctors feel she is doing fairly well with the intestines she has left. They have given me high hopes that we would be able to rehabilitate her gut with time. They know how much she has and they are not exactly sure how well it works but hope that with time and feeds it will grown and adapt. Right now she has had the barium study done and we found out she has all of her rectum. Which means she has the muscles in the rectum that would allow her to hold it it when she had to use the bathroom. That will help her in many ways if she were ever to get reconnected. One day I hope she will but right now that is the least of our worries. The plan for right now so far is to run her lipids for 12 hours and continue her feeds at 2cc's an hour continuously. They will continue to take daily ostomy output, and do blood work daily, hopefully on Tuesday the 6th we will have an answer from CCS. We are waiting for them to give us a yes on omegaven and she will get started. They will continue to check her feeds and either make them go up or down depending on how well she does with it. She was at 3cc's yesterday but they told me today that I guess they found too much sugar and fat in her output meaning she was not really absorbing it all at 3'ccs. So they brought her back down to 2 which is ok. Adriana continues to be a sweet loving baby that enjoys spending the day with her mom and watching tv. I like to lay her with me on the little cot that I sleep on which is right next to her big crib. She will take naps with me and loves it as much as I do. Hopefully we will be out of the hospital soon, the sooner we get omegaven the faster we will be home.