Saturday, August 13, 2011

I am trying to keep up with the blog but its harder as Adriana is growing well 2, she is all over the house and gets into things she shouldn't be. She is doing great so far, nothing new with her. She will be getting a assessment with speech therapy to see if she qualifies for those services. As for OT i have finally found a organization that is free of charge who does it in home. There is a waiting list tho so she is currently on it, she is still progressing in feeding tho, shes very interested and I cannot eat anything in front of her without her wanting it as well. The only thing she may not eat is yogurt and no one eats that in front of her. She does swallow some of the food after she kinda chokes on it, she does not know how to chew yet but has gotten the swallowing part down. She drinks water and of course loves coke, she only gets little tastes tho mostly water is all she gets and of course some fresh drinks as well. On the other hand she l0ves music, very loud and dances to it, she also sings it. She does know many songs she hears over and over and knows when to put the words in, other than that she just lip sinks.I believe we will be seeing her GI this coming week and lets see how much she weighs. I hope she has gained some weigh in this past month as they did drop her dextrose from her TPN from 14 to 11.5 so lets see how that goes. As for everything else I am also sure she is taller, thinking of questions to ask her GI. She has started back on her FLagyl this week and will be on it for 3 weeks hopefully this will help with increasing her gtube feeds. Adriana is at 31ml/hr, I tried advancing to 32 but I saw the big difference and had to bump her back down the same day. Maybe we will have better luck next time. As I am seeing this is a very slow process even tho I wish it was something fast. I guess I just have to continue to be patient and hope things ease on and she continues to be healthy.I will update after we see our GI and get some feedback from him as to how he feels things are going...