long time

I know it has been a while since I have posted anything on here but our life got kinda crazy for a while. Adriana is doing good she got her gt tube placed last week on the 6th and not all went as expected. They tried lapriscopicly but due to her haveing too much scar tissue they were not able to. They had to make a insicion in her tummy and they had to seperate her stomach from her intestines. the surgeon said they were fused together by a lot of scar tissue. In order for him to place the gt tube he had to seprate them or if he would have placed it he could of punctured something. That would then suck even more... so surgery went well and healing too. The gt tube was a set back for feedings tho, when she went into surgery she was able to tolerate 18ccs cont which is about 14 oz 4 ml a day of course. Now she is only able to tolerate 6ccs cont which is about 4 oz or so. I was told since they did mess with her stomach and intestines it seems to slow down makeing her not able to tolerate much feeds right now. It is not a permanent thing but I have to slowly bump her up to 18 like I did before. With some time and enough healing time she will be back at 18cc. We know she can tolerate 18ccs so moslt likely she can tolerate more little by little. They altered her TPN to adjust the calories that she can tolerate thru tube feeds and so she will continue to gain weight of course just get a little more from her TPN than milk. Other than that she is doing great and I am starting to get a hang of her GT tube it is not as hard as I thought. The hard part is to watch her to make sure she doesnt get her hands on the tube and yank it out. It is still fresh so I wuld have to take her to the ER to get in fixed and checked for placement.