Tuesday, April 13, 2010

Nothing new with Adriana she is doing good on her 3ccs of milk which is great, Little by little her feeds will go up and we will be able to really tell what she can tolerate. Can it eventually be enough to get her off tpn? I don't know I guess we just have to wait and see.Every day is something different with her, she makes new faces, new noises and it nothing but a ton of giggles. Although she has a medical condition she lives a very joyfull life filled with lots of love and laughter. It looks like nothing is wrong with her. When we go out and people stare at her I of course get annoyed and she doesn't seem to mind. Better forher more attention which she just seems to love. But don't ignore her because she will scream her little head off. We have GI clinic tommorow and we will see what they alter her TPN to. The ethanol lock seems to be just fine, i finally found a way that helps me be able to draw back the ethanol without fighting with her line.