Friday, April 16, 2010

4ccs and OT therapy

Adriana is now up to 4ccs an hour, so far so good, only time will tell how she does or can handle it. Today I will be measuring her output for the 24 hours,fun right? Especially when she wiggles so much that at times I don't get the output in a cup but all over her or her crib. Our number now is 350, so far we have 30ccs since 3pm. She usually averages 30ccs in 4 to 5 hour time frame. lets just wait and see I don't want to get to ahead of myself. If she tolerates this she will be on it for a week and in a week after her body has had some time to adjust I will bump her to 5. Remember this is the most Adriana has been able to handle since she had a lot of her bowel removed. This will also tell how fast the surgeons need to place a gt tube. We took her to feeding therapy which she is not doing so good with. I am not sure if it is the NG tube that she hates, and that may be why she is not interested in having food. She gags a lot and swallowing she hates, might it be because she feels the tube in her throat? maybe, her OT therapist wants to take a brake as in we stop OT therapy for a while and I continue to try at home. She feels that untilll she gets that NG tube out and gt tube in she will advance. In the mean time she doesnt feel this is at all helping.