Sunday, February 21, 2010
Adriana is doing well just being herself. We started her back on feeds at just 1cc an hour. I placed her NG tube on Monday in clinic. I did not enjoy making her cry but I have to learn to place it myself. In 2 weeks we will bump her to 2cc's as long as she doesn't dump. So far so good, 300 is our number for ostomy, it would be the most her GI would like to see. Well nothing new with her we have pt therapy once a week and ot not as often, but she is getting better with eating. Of course she doesnt know yet but is learning little by little. The other good news is she doesnt qualify for a transplant anymore, the GI dr told me she is doing too well and would not qualify right now. That's good news, because she is getting closer to 20 pounds which is transplant weight. Well let's just see where things go. This coming month she will be a year old. It is very sad looking back at our year with her but just to know she is doing great right now it was all worth it. She has suffered a lot but if you were o see her she is the happiest baby I have ever seen. She is nothing but smiles and giggles, you would of never guessed what she has gone through.