Wow, It has been so long since I have updated Adriana's blog. Well here I am Adriana has been home for 1 week now but has been under my care for 2 weeks now. She is doing good and I am getting the hang of doing all of her care. It is alot to remember and do but I seem to be doing good. She has been fine lately just loves to be held, watch T.V and loves the attention. Adriana is on HA for 24 hours and I run her omegaven for 12 hours. She has had 2 clinic appo and they drew blood as well. Her bili started to rise and now is coming down and all of her numbers look good. The doctor was satisfied with all of them no worries for now. She enjoys being home but she is not easy to put to sleep at night. I hook her new bag up at around 9:30 and her omegaven as week. We then take everything to the room to go to bed and she just starts talking and talking. She obviously does not want to go to sleep. I get her to sleep and lay her down and 20 minutes later she starts to cry. I get up and try to get her to sleep and she is talking again, of course in the dark until she finally falls asleep. I wake up about every 4 hours to change her diaper and empty her ostomy because if I don't she will get her blanket wet. She has an appo with her padiatricion on Monday, and next week on Mon with her surgeon. Next Tue she has clinic which is more blood draw. I did have a problem with the line change on Monday when I had to change her blue max plus cap. It seemed that the blood was flowing back from her broviac into her line and I had started her infusion with her TPN and there was an air bubble. I don't know how that got there because I had primed the tubing and there was not air at all. I now hook her up every night with her new bag running so it will push against the blood when I connect her. I just get a little jumpy because Adriana cannot go without her HA for a few minutes due to her sugars dropping. We will also be seeing her thyroid doctor and they will be running some test to see why her sugars drop so fast, we will go to day hospital or something, we wont get admitted but we will spend all day there. I am getting use to doing all of her line changes daily, it's just another routine I added to my life.