Adriana has been doing good since she has come home. Only one problem she decided she did not want her NG tube any more and pulled it out. We had to take her to the emergency room to get it placed in again and the next day it was out again. She really does not want it, I wouldn't blame her, plus it makes her sneeze alot and her nose itchy. I let her GI doctors know and we will see how we can get it back in without having to go to the emergency room, there are too many sick children. I have been offering her milk by bottle but she will not suck on the nipple, she will play with it for a little while and drink the few drops I can get inside her mouth but that's all. Of course the milk is just for rehabilitation her main calories come from tpn/omegaven. She is doing good on omegaven, I can actually see her color setting in, her eyes are less yellow and she looks much better. She almost has 1 month on omegaven already and her labs have been good. The doctor is happy with it, I am getting use to hanging a new bag daily and can do it without thinking about it. Of course the hard part is connecting it to her because she does not like to stay still she will wiggle like a worm. Thank good she has not had any fevers or anyhting, she will get fussy sometimes but it is easily fixed with picking her up or rocking her to sleep. Knock on wood that she does not get an infection that is th elast thing she really needs. I will be adding some more pictures of her and we have a GI clinic appo on tuesday, her last one was about 2 weeks ago. The doctor said it was fine she was doing good no reason to see her weekly. We have not taken Adriana out so much for the flu season but when we have gone out I also get those stares like what is wrong with your child. They tend to ask because they see her NG tube and ask why? It's a long story I tell them but she just doesnt know how to eat yet, she's learning that's what I tell them. Then they saw ahh like if it was that bad, they don't know the whole story because that is much worse.