Adriana and her Dad as you can tell she is yellow but soon that will change. She is on her way to get omegaven which as you may all know will really help her as it has helped other kids.

This will be my new place to blog, Adriana has a caring bridge page but you are very limited to what you can upload so I decided it's time to move on up to this. From now on I will continue to write about Adriana's journey on this page. Adriana is doing well for now, she has not had any problems lately. The last one was with her line infection but thank god we had that removed and a new one placed. She finished her antibiotics on Monday so right now the only medications she is taking is her thyroid and iron. I was told the iron is because her hemoglobin is a little low and there is also a study showing that taking iron may also help with absorption. That Is what I was told, I hope it does help her. Her hemoglobin has been low and I was told it was due to her liver. The liver has many jobs and since it is not in tip top shape right now due to her TPN it is not doing everything it should be doing. Adriana will be going to Stanford on the 28th of this month. On that day she ill begin Omegaven. As you may all know I have been trying to get it for her all of this time and now she will finally be able to join the club. Her bili is at 6.4 that was from her lab work yesterday. As for her feeds are at 2ml an hour for 4 hours, they are giving her trophic feeds. This is the best she has ever done with her feeds, they have tried many times feeding her and all she has done is dump. It looks as she is not dumping right now, although it is not for nutrition reasons she is taking it very well. Her ostomy output has changed, it varies day by day but it comes down and goes back up to her normal number. Her urine as well is good and it seems as her body is responding to her feeds. The doctor feels as if we are headed in the right direction with her feeds. Only time will tell how well she does or what she is capable of. Adriana is being seen by a PT and OT, hopefully they can help.