Friday, July 20, 2012
Adriana has been TPN omegaven free now for about 5 month now, she got off a little before her 3rd birthday.She has continued to gain weight in these last months and has been able to stay healthy as well.The last plan as we saw her GI doctor was to play with her night feeds.He would like her to come off her night feeds and just do day feeds.Adriana only runs her night feeds for 7 hours right now on cont feeds but as her boluses increase the night rate drops.She started her boluses at 125ml and is now at 165ml the goal for her bolus is 220ml and 5 times a day followed by 30ml of pedialyte and before and after night feeds.She also gets 400ml of hydration fluids thru central line, looks like we have left the line for last.We will see her GI doctor the 1st of Aug so we will see what his thinking is now I guess after he sees where Adriana is at her boluses.Adriana is talking alot and understands everything you tell her.As she is also eating more not a ton but some calories.She is into Starbucks frappujcinos and peanuts that's her things right now.If she spots a Starbucks in the street she yells frappuchino, one crazy little girl.Shae jut finished preschool and summer school her first year she did very well, she enjoyed taking the bus to and from school and playing with her classmates.She will be doing her second year of preschool next year and she will be going up a level as well.She is too advanced for the level they placed her in this year.Thats great news as well, all and all life has been treating her failry well so far.I cant complain
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