Saturday, April 23, 2011
Adriana has been fine lately nothing new with her, she did start back on er 2 week cycle of Flagyl. Hoping to increase her food, she has been on 26ml/hour now for some time. After her 2 week course of Flagyl I was able to advance her to 27 and she did put out 100ml more than they want to see but I am going to give her a few days and recheck output to see if comes down. Other than that she will have a 2 week break from flagyl and back on, I really think this Flagyl will help advance her feeds, well hope so. I have not had a crazy time with her ostomy and leaky bags, everything has gone good since I switched her bags to a different one, but now the gtube is driving us crazy. It has been leaking too much and she scratches it which makes it bleed and she gets very pink skin around the gtube site. I have been putting a barrier on the skin which is helping with the redness but thats it. Adriana just tuggs on it and its very hard to keep her hands off. We did have a GI appt this tuesday. All went well, she did start to gain weight again and we will just keep doing the same thing and try to advance her feeds. May I add she is takeing much more orally, she drinks much more water now and does not gag at all. She will put food in her mouth and spit it out alone without gagging. She like sucking on lolipops and candy oh and choloclate, all the no no's for her. She is a happy 2 year old.
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