Adriana's birthday was March 6, she was inpatient at the hospital but had a great birthday. She turned 2 and was loving the shiny candles on her cake. She even blew them out with a little help from dad of course. She was able to keep her line and come home on the 7th with a 10 day course of penicillin, she was on Vanco but her bug was not as sensible to it as penicillin. She had lactabacillus which we are still not sure when it came from. As of now she just finished her antibiotics 2 days ago which mean no more waking up in the middle of the night to run them. It feels nice to just wake up once to empty ostomy bag and change diaper, my usual. They had told us that if Adriana did not get a neg she would need to get the line pulled because as it seemed they were not able to clear her line. That same day she had a neg and it stayed Neg for 5 days thank god, meaning most likely her line cleared up. We were glad we were able to keep her line and life goes on. Nothing new with her as of right now, she is doing a little more cruising through the house and is getting ready to walk , but wont yet let go. She will stand all by herself though and is starting to say more works and know where her eyes and ears and mouth is. She is advancing as she should be but of course behind. Adriana is a happy 2 year old girl that loves life and holds no grudges against anyone. She is very kind and loveing and at times just wants to cuddle next to you than play with her toys or explore the house. I am proud to say I am a her mother, she is not easy to care for and requires much time but at the end it is all worth while to know she is here with me and of course enjoying every minute she has. Pics will be posted soon

lactabacillus (line infection)

Since our last post Adriana was doing fine, we did get admitted, she has a line infection... lactabacillus ugh meaning she has some what of a leaky gut since it is good bacteria that is in the small bowel. They have yet to get a negative culture, tuesdays is negative so far. If it stays neg she can keep her line but if it turns positive her line has to go. Its a waiting game right now, this line has been in since 09 please cross your fingers so she can keep her line. I will keep you updated as the days go by. By the way sunday is her 2nd birthday and she will be inpatient, why cant life just be fair?????