We are still here but its hard to update when you have a childr crawling all around the house and getting into things she shouldnt be getting. Adriana is doing great, she was in patient last week for a infection, well that is what they like to call it. She only had one positive culture in the ER and then the rest were negative including peripheral stick. I am sure she never had a infection and that they contaminated the blood draw. Well we were in for 4 days and then came home with a week of antibiotics, her last day will be sunday. She has been doing well other than that, she is trully growing up and just doing more things each day. She is crawling like a pro and nothing holds her back. Adriana carries her feeding pump and milk in a little back pack that was a Gift from Louise and Juliana.. Thank you again she loves it. Adriana is learning more words each day and loves to say Bye to everyone. She can say many words and just loves to talk all day long. She tastes all sorts of food, she will grab everything in her plate and just taste it all, she will bring out her tounge and start licking it all. She will not chew any of it of course but she has made a big advance in just bringing food to her mouth and tasteing it.

Adriana is doing ok on her feeds, she is still at 25cc cont, well for 20 hours but I like to keep her at 24 hours so she will get those extra calories. She has gotten to 26 and then starts to put out too much so back to 25, we are stuck for now. I know it is not perminet so I am not worried. She advanced very quickly on her feeds from 1cc to 25 so she is now 50% calories. Her GI doct is very impressed on how far she has come and how healthy she looks. He said she is doing very good on everything and has advanced very quickly. She is headed the right direction and for me just to keep playing with her feeds and trying to advance. Adriana was running her TPN for 16 hours but since her GI said she is very active we cut her to 14 hours and if she does well then next Tue she will be down to 12 hours. That means she will run all night and be off all day, Adriana is very active and tugs her lines to the limit. She really needs to be off all day now, as for she is learning to walk and will walk with help. If you hold her 2 hands she will start to walk like crazy, In no time will she be walking, then there will be major trouble. There were no more changes, That wad the only thing her GI changed. I will keep trying to advance her feeds and see how she does. Adriana is in the 85-88% tile for her weight, but she is evening out for her length and weight. She looks great and healthy and is growing on her own curve as well as her weight she has her own curve on the chart. She started not even haveing a spot on the chart when she was born.

Adrianas mickey was replaced with a smaller one since we were haveing major leakage from it, she had a 14fr 2.0 and now she has a 14fr 1.7. A smaller one, at the time Adriana got her 2.0 it was a snug tight fit but since now Adriana is longer and muck skinnier she needed a smaller one of course which is normal. So we got a new one placed and this one is a snug tight fit as well so we have no leakage or problems as of now. As for her ostomy she has great skin right now and the bags stick very well, they last her a week and when I change it its not because of leakage its just so the bags arent too old.

I will be adding pics of Adriana soon, other than that Adriana is doing very well and her health is under control. We hope to have good Holidays and stay out of the hospital as long as possible.

Oh may I add one more things Adriana had her line repaired while we were inpatient. A nurse popped her line, he was trying to flush it and pushing agants pressure so they repaired it. We have had 2 repairs both due to nurses not knowing what to do or care for the line. May I add I have been the only one doing all of Adrianas care and touching her line and have never broken it nor has she and she sometimes gets her sticky hands on the line and pulls it with all her strength. She has only ever had 2 repairs and both a nurses fault at the same Hospital. May I add she does not go to that hospital for her care we go to Stanford so she will not be going back there again......