It has been a while.... well Adriana is doing well she was in for a line infection at the beginning of the month. She was just in again for the gt tube. They checked for placement to make sure it was still in the stomach which it is. She was discharged yesterday and just took a bath and a nap as well. They were not able to switch it out for a mickey quite yet because she has granulation tissue and most likely will not let the mickey sit correctly. We will hopefully get it s/o on sept 1st lets just see how things go. Adriana is not at 14ccs and our goal is 18 well she can tolerate 18 so past that to hopefully get rid of her line and tpn.

Adriana got a line infection the day before her GI appt. We took her to the ER and she had blood drawn and we were admitted. It came back positive for gram rod posotive cocci. Well she was on vanco and her fevers stopped they lasted for 2 days and she looked miserable. As her fevers went away she started to feel much better and act like herself. We were there for a week and finallu got out last Tue. i was so happy to get out we had some very crazy and horrible things happen to us. Adrianas broviac broke, well it didnt brake a nurse busted it. How? I am not really sure she said she was flushing it and it busted she may have been flushing it with too much force for it to brake, of course it was the skinny part that broke. They repaired it and her line is fine as of right now but of course I was really mad. I have been takeing good care of her line for a nurse to bust it in 2 minutes. We also had some nurses that did not know what to do with Adriana or her broviac. Next time when we get there I am going to ask all her nurses have you ever worked with a broviac? I am really tired of all these nurses that think they know what they are doing with her and really dont. Ugh it makes me mad and frusterated because they dont want me doing Adrianas care in the hospital. When I asked for some Saline flushes to flush her line the nurse gave me a blank stare and asked me why do you need them? i told her to flush my daughters Central line.... she then said Oh no no I will let your nurse know. I told her you know what my daughters infusion has finished 5 minutes ago and we yet have a nurse to step foot in the room and I dont want her line to clot. I then told her I do it all the time so I didnt need a nurse. She would not give me a line flush..ugh I had more experience working with the line than she has so whats the deal? Dont you just hate when that happens. Well we are finally out and running antibiotics at home... She is on Vanco the eclipse balls so since I already have taken those home it was easy. Adriana is on 12 ccs cont but I will bump her to 13 today and hopefully by the 18th we will be to 18ccs. On the 18th we have a GI app and will also see the surgery team, they will give Adriana a mickey that day and take a look at her gt tube site. It has some dreadfull granulation tissue. I am putting some Hydrocortosol I think it is called which will help it not be so inflamed.

Adriana after getting out of the Hospital