The bad news is that Adriana has a ear infection. She does not handle antibiotics orally good at all so they decided it was best to give her the shot. It will be a series of 3 doses, which is today tomm and the next day. This will help fight her ear infection. The strange thing is she hasn't had any symptoms of any sort, no fever or anything. We have a follow up app on Monday to see how she is doing. She is sleeping right now since she has had a very lond day and a shot to top it off.

Adriana is still not over her bad bronchitis, her symptom is a very moist wet cough. She will cough a lot just to try to get her secretions out. She has a very hard time sleeping at night due to this, and of course I do too. I also have a cold which is most likely because I am the one that takes care of her and always with her. She has a doctors app today and we will see what they say. I do not like taking her to the ER because they do things that are not necessary and sometimes don't know what they are doing or what to do. i would rather have her see her pediatrician and let him decided. Nothing new with Adriana all her medicial things are the same, still tpn/omegaven dependent and some oral feeds but not enough for it to be measurable. Hopefully we will get feeding therapy for her soon. I will be adding some pictures of her so you could see how her yellowness is fading away. She still is a little yellow but not as much as she use to, which we are very happy with. She is also outgrowing her clothes very fast which sucks because that means new clothes.

So here is the latest scoop on Adriana, she is doing better but her cough is still the same. It is also a little better but now she has secretions which seem to be hard to get out. She will cough a lot until she is finally able to vomit and get it out. It does take her a while though and I know she is very uncomfortable. We will be seeing the doctor hopefully tomm and see what he thinks. We went to her GI appo on wend and everything looks well, they did go down on her sugar in her TPN bag and up on her omegaven. She is now down to 13% on her sugar and getting 70ml of her omegaven. She also weighs 15 pounds 5 oz, they just don't want her to grow too fast so they had to adjust some things. Well her bili is at 10 right now and was 9.7 last time but since she is fighting this cold the Dr thinks that is why. They also told me that her other liver numbers have come down 200 points which means everything is going in the right direction and soon her liver will feel much better. I can tell her yellowness is going away, not just in the eyes but her face and legs are becoming more pink and less yellow. She has been doing good other than this nasty cold, bronchitis that she has. I know it will take time to get over this but she is a very strong baby. The Dr also feels we should put the NG tube back in her nose to see what she can handle with feeds. We will most likely wait until our next appo to do this because since she does have this cold he doesn't want it to plug up her nose even more. He also feels that in the future as we advance on her feeds which hopefully will happen they will need to put a GT tube in her belly. It is another surgery which has many complications but it is one more thing to help heal her. We will see what happens with time only time will tell. I will keep updating everyone and add more pics of her soon

So nothing new with Adriana we had a Dr's App yesterday and everything went well, the Dr told me she sounds better and looks good. That was a relief, she looks much better to me as well. Tomorrow we have a GI app in Stanford, we will have some blood drawn and the GI doctor will check her out. Adriana is doing well after that scare of Bronchitis, she is not weezing as much and her lungs sound clear now. Nothing new with her but tomm I will update you on the lab work.

So here we are back at home, we got home on Thursday afternoon. They decided they wanted to keep Adriana in the hospital for 2 days just to make sure she is getting better and not worse. So she was we went home with some tamaflu and albuterol every 4 hours. She is doing good, she still has that cough but her respiration is getting better and no more of that vibrating noise she use to make while breathing. She is very happy to be home, as soon as we walk her through the doors of the hospital the first thing they want is her blood and an IV. They decided they needed one and they did not use it for anything but to draw blood. As soon as Adriana felt they grabbed her hand and started feeling around she started to cry, she knew it was coming. Of course I was not able to do anything but I let the nurse know you only have once chance to get it in, if not don't touch her anymore. The nurses will keep trying until they get one in, it doesn't matter if that means 3 pokes, so I made sure I was watching. We also decided we needed a heater in the room, since Adriana is sleeping in the room with us I had her dad go out lat night and buy us a heater for the room. She is sleeping comfortable right now in our room. Adriana has been on omegaven for a little over a month now and is doing good. Her color is improving but of course she still is yellow, her eyes are but her legs are getting pink. She is not great with drinking her milk, so if you have any advice on how I can make it better please help. She does not like the bottle, and the only thing she drinks are the little drops I can get in.

So Adriana was admitted into Children's Hospital last night. Since last week on Friday I realized that she had this really ugly cough, it got worse over the weekend and the wheezing and rapid breathing also started. I took her to a Doct appo on Tuesday and they decided they would like to take an x-ray of her chest, so they did. I got a call later that day from the Dr's office, they told me that the tech that read the x-rays said that she was having heart failure, so the Dr though that she might just have sever bronchitis. We came to Children's later that day and they put her on some oxygen to help her not work as hard. They gave her a lot of breathing treatments which also helped her alot even though she really hated them. They also decided that they would need to put an IV in her, which I argued about. They don't need one, she has a central line and that is enough for her. They were not going to give her antibiotics anyways so why an IV, I told them that they had one shot to get it i, if not then that's it. So they did try once and they were able to get it in, they drew some blood and ran some test. All of her numbers came back just fine, nothing out of the ordinary which was very good. They said Adriana has bronchitis, they they felt like they should monitor her over night and see what happens. She did very well over night and did not need any oxygen. She has been doing fine since, I set up her tpn/omegaven last night and I will do it tonight as well. I would rather not have so many people mess with her line, I can do it all for her, well i have been doing it. The Dr told me she would have to stay one more night and if all goes well she will be discharged tomm. I hope she will because staying here is so boring and she is in isolation just in case. The Dr also told me that the pharmacy would have to inspect her omegaven to make sure it is appropriate for her to use. I told them it didn't matter what they though, that it was her lipid and it was prescribed to her from her GI doctor so if they had a problem with that to give her GI doctor a call. So they decided that she could use her omegaven here in the hospital. Well I will keep everyone updated I am going to go back upstairs with her since I left her alone and if she wakes up she will cry because she does not know where she is at. Also when you leave your baby alone in the room someone always comes in and decides they need to draw some of her blood. Why? I don't know they don't even need it. She has bronchitis not something alse.

I got a call and I was told that Adrianas blood cultures have shown no growth in 2 days , so far so good. On the other hand I am sure Adriana has a cold, I have a cold her dad just got over one and she has this very nasty cough. Other than that she has been doing very good. She turned 8 months yesterday and on the 9th it will be one month on omegaven. Like I had said her bili is coming down. She had an appo with the thyroid doct yesterday and I was told Adriana might not even have hypothyroidism. The problem is since she was premature so was her thyroid gland, by now it should be mature but since she is taking medication there is no way to tell. They don't want to stop her medicince because it's too risky, If she were to really have it and they stop her medicine it will affect her brain developement. So she will have to wait untill she is 3 years old to know for sure and check it. Takeing the medicine will not do her any harm if she doesnt need it though. We are also not sure why her sugars drop very fast and she is not able to be cycled of her tpn. They thought it was her liver but other children with sicker livers do fine with cycling and not her. There might just be something else to Adriana but we are just not sure yet. It will take some time to find out exactly what is causing this. The doct ordered some labs and we will see what happens from there. Adriana loves to watch tv, she likes Tom and Jerry and also sponge bob squarepants. She also enjoys playing with the toys her dad has bought her but most of all she enjoys nap time.

Adriana has had a very busy week, this whole week she has had app the only day she had off was Monday. Yesterday we went for her clinic at Palo Alto and saw her GI, things are going good with her but she was running a low temp fever Monday so we decided to draw some blood cultures. They also did lab work, so her platelets are back up and her bili is coming down which is very good the direct is 7 soemthing and total is 9 something. The blood cultures have not grown anything, I am pretty sure that she is just trying to fight a cold. Her dad had a cold last week which is is just getting over and I am starting. So she might just be starting to get a cold as well, hopefully no infection. Her GI doctor decided she does not need the NG tube anymore and just to keep giving her the bottle so she can learn and finally take it. She is doing well she will actually open her mouth and accept the nipple of the bottle, but of course will not suck on it. So I just put the nipple in her mouth and let it drip a little milk and then she swallows it. I on't think it is measurable yet, what she drinks but soon with time it will be. She is doing good and I am too, I think I am pretty use to doing her care and feel very confortable with it now. I got into a routine now so things are going good. They also decided to go up on her omegaven, she will now be getting 6.5 of the bottle. As she grows she will get more eventually. Adriana weighs 14.10 pounds right now and her last GI app she was 6.2 kilos and now 6.6 kilos. They did cut down her calories and she is doing better.