Sunday, February 28, 2010
Wend night Adriana was running a fever so I decided to call the GI doctor on call and of course he had me bring Adriana in. We slept the night in the ER and the next morning we had a space waiting for us in the nursery. They did take some blood cultures from Adrianas line and sure to say we got posotive results she had staph and I cant think of the other one right now. She was started on vancomysin and that will help clear her line. We only have one neagtive culture right now and need 2 more in order to go home on antibiotics wich I already know how to give to her. I am more scared she will catch something here and take it home with her. So we had a nurse that honestly is nice but seems that she has no idea what to do, she did many things wrong like picing up lines from the floor and wanting to use them, to laying out all of the alcohol pads on a chair w/o being in there packets and wanting to use those too.It was like she was trying to contaminate Adrianas line I don't know what she was thinking or where she went to nurisng school. I need to watch the nurses like hawks here, so have some good news. Friday we disconnected Adriana to see if she is able to tolerate being tapered off of TPN, and if so for how long without her sugars dropping. We have tried many times and have not succeded but this time to everyones suprise she was able to tolerate 7 hours 1/2 and then her sugars dropped and they drew a lot of labs. I was told that her liver does not have enought glycogen stored so tht is why her sugars drop. 7 1/2 hours is amazing to have her disconnected I would of been happy with 1 or 2 since she has been running at 24 daily anything would be great. Last time we tried tapering her, her liver was much sicker and bili much higher but thanks to omegaven her bili has come down a lot and is almost normal and she is able to come off of tpn. That is the only good thing we got from being here, I can't think of anything else.I hope we are abe to go home soon, this Saturday March 6th is Adrianas birthday she will be 1 year old. I hope we are out by then for her birthday so we can throw her a little something and celebrate with the family. I would hate for her to spend it here in the hospital. I will keep everyone updated with what happens and when we are able to go home from here.