Saturday, September 19, 2009
Adriana has been doing well she continues to get her thyroid medicine orally and is taking it. Although she makes faces and just want's to spit it out we manage to get her to swallow it. I have not yet tasted her medicine to see if it is bitter or if it just her. When I was giving her a bottle with breastmilk she did the same, she acted as if it had a very bad taste and would try to spit it out. Adriana's ostomy output continues to come down, they also changed her feeds. She was getting 2ml every hour all day but she had too much residuals so the doctor changed her to 2ml for 6 hours and a 2 hour brake and back on feeds for 6 hours. She seems to be doing better with this but she still has residuals like 5 or 8. The rule still applies, if it is less than 10 just re feed it to her and start her feeds. If it is more than 10 most likely they toss the residual and start her fresh on her new feeds. I hope that as soon as she get's on omegaven she will be able to tolerate her food better. This will help with the liver function and spleen so it would be easier for her stomach to digest and brake down the food much faster than now. Right now she can not be on feeds every hour because she needs some time to pass her food down. Adriana will be takeing her trick to Palo Alto on the 28th, the day she will be started on omegaven. Soon I know we have been counting down the days. Adrianas ostomy output has varied but it came down to the lowest she has ever had it which is 93 in 24 hours and that is with feeds. I don't remember what was her lowest without feed but I know it might have been around 150. I hope her body is doing what it should be doing and like I said hopeully omegaven plays a big role in her feeds. I am not sure if we will have to put Adriana through another surgery, most likely we will but I don't think it will be any time soon, at least I hope not. So keep your fingers crossed that she continues to do well.
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