Things are going good with Adriana, she is 11 months now and almost a year old. She is behind on her gross motor skills but is trying hard to catch up. She does sit with a little support and is able to catch her body when falling over. She does not crawl or talk all she can say is mama and papa of course in spanish because that is what we talk to her in. She is the happiest baby I have ever seen and loves to laugh and giggle all day if you let her. She loves to play patty cake with me and loves to make faces at us or noises and then laughs. She is now up to 18 pds 4 oz and pretty long, she is growing at a good pac but stretching pretty fast. We had clinic yesterday with our GI doctor and he is very satisied with her and how things are going. She is learning to eat and we have feeding therapy and physical therapy as well. Her bili is coming down, it is still elevated but not as much as it use to be, we are at 4.1 right now and her liver enzyme numbers are coming down. Thats always good news to hear, I mean after all I use to hear was that they were going up. Adriana had been on Ng feeds for about 1 month or so and I was suppose to go up to 2ccs cont but she decided to remove her tube. I of course did not feel confortable placeing it so we had to wait untill clinic. I placed it in clinic with a little guideness, it's ot as bad as I thought, I just don't like makeing her cry her little eyes out. We started her back at 1cc and in 2 weeks we will go up and see how she does. Cross her fingers that she can go up and do well. Our number for her ostomy output is 300. Her GI doctor doesn't want to see 300 or more. If so I need to give him a call and if she reaches more than 300 I have to bring her in. I also asked him what his plans are with her since she is reaching tranplant weight. He told me that right now she doesnt qualify for transplant because her liver is not as sick and she hasn't lost line sites or had many line infections. That was something nice to hear since he does know how I feel about tranplant. I am not againts it but would only do it if there was no choice for Adriana. 3 months ago she qualifies for transplant and now she doesn't, so he told me we will just keep working on getting her to learn to eat and of course getting her feeds up on her NG tube. He said he doesn't really have a time frame on how long he said only time will tell. Which is true because one minute she is fine and the next she is sick. Well I will be adding more picture of Adriana and her summer clothes which she loves because basically is naked.