Friday, September 25, 2009

Wow so we finally come down to the end of this long week. Adriana is acting herself and of course feeling much better. So her cultures came back negative for the infection which is the good thing. That means they have cleared it from her blood but she still needs to finish up her antibiotics. Her infection this time was gram rod + and gram rod -. Last time she has MRSS which is a staph infection. So I did Adrianas line change yesterday which I think I did pretty good, I am getting the hang of it. I am more worried about being as sterile as possibe and clean as possible. It helps when I have someone there playing with Adriana while I do the line change. It's also easy to do her broviac change when someone is holding up her little arm and playing with her. That is the only way we can get her to stay still. So far the best person on doing all of that is her dad. She adores to play with him and he is the only one that can get her giggling and laughing. The nurses too but she kinda just stares at them all wierd. Anyways her feeds were restared and she is getting 2ml for 4 hours every shift. So 3 times a day only for now. Monday is the big trip to Stanford I hope we get to go. I recieved a call yesterday afternoon from the nurse coordinating the whole trip. She told me that she had talked to the GI team in Stanford and told them all about her infection and how it was cleared she just needs to continue her antiniotics and she should be good. Well Stanford said they will have a YES or a NO answer for us today. I really hope she get's to go, we have always been so close and been held up for some reason or another. The nurse told me that Adrianas liver test have improved a little which i am really sure it has been because her feeds. The reason is she has been on feeds for about a month and so that must of really helped her. That doesn't mean she won't benefit from omegaven. Cross your fingers hopefully I get the call with good news today.