17ccs

Adrianas feeds were pumped up last night to 17ccs she is doing fine nothing new all looks the same. It looks as if we havent bumped her feeds in a while but thats good.

more news actually Great news!!!

So Adriana's feeds went up to 16 and she did well, nothing new she is absorbing it all. Her output actually came down from the 15ccs to the 16ccs. She is great, perfect I just can't believe how well she is doing, how her tummy listens to me when I tell it to get better and to do what it needs to do with the food. I know I'm weird...... I just got off the phone with the NP from Dr. Castillo's team, our GI team and she told me that Adriana is absorbing all of her food and not to worry. She told me that our next GI appio has big things for us coming, which is next wend. I can't wait, she told me that by then Adriana should be up to 18ccs, they might want to have us try bumping her 2ccs each time I bump her feeds since she is doing so well with 1. She told me they might also put her on bolus feeds in the day and have her running her drip feeds at night so she might just get hungry and want to eat as well as she will be disconnected from her milk too!!! Thats great news to be able to carry her from place to place without carrying a backpack too. They will also look at dropping her hours of TPN down so we can cycle her more hours. We will have our upper GI done that same day just earlier so they told me they can kinda just look at it and give me the rough draft news, which of course is not as accurate as the final reading but it is something. Oh I just cant wait...... that is all the news she told me when she spoke to me but thats a lot of news!!! Great News.... I just hope everything goes right with Adriana, i am so use to her doing good and then make a turn and not do so great. I am just not use to haveing good news with her, I know she can do it. I know she will loose her lines and probably have a gt tube in for a while but that ok I can deal with that..

up to 16ccs

15ccs went well of course she did come up a little but nothign drastically within the normal range. Adriana is now up to 16ccs and so far so good, I wander how far she will get on her feeds? Anyways nothing new with her all is going good. No news is good news better than bad news right? She of course is doing new things daily and just realized she can yell. She hollers all day for no reason at times but she seems like she is dying to talk and cant just yet. She can say mama and papa and that it but she can yell your ears off. She thinks its ok to yell at just about any place, wherever she feels like it. It better to not even tell her anything because if you tell her no she will do it worse.

increase feeds...

Adriana's feeds went up today in the am, I will finish at 5am tomm morning. So far so good, it does seem like she is putting out a little more but I have to wait until the 24 hours are over to really know for sure. Her output might just slow down during the night like it usually always does. She puts out more in the day and less at night. June 23rd we will be seeing her GI doctor and we also have 2 other appoi that day. We will have our consultation with the surgeon regarding a gt tube and also a upper GI studdy that day. Adriana has a long day ahead of her, lets just hope we get good news for every appo. Hopefully we will cycle Adriana longer than just 4 hours that she is being cycled right now. Lets see how that goes, as for her upper GI study she had one way back, I am not sure when exactly but I was told it showed that the ink reached her bag in 15 minutes, I dont think that is what it will show this time. Lets just see as for her feeds she is up to 15ccs and so far so good, when we see her GI doctor if all goes good she should be up to 18ccs. Here are some pics of her today.....


Always wants to yank the camera from me


You say "Bravo" and she begins to clap


no comment


Cheese


She likes her fingers


Just Adriana being curiouse

Picture fun!!!

Mommy and Adriana

delivery

We got our new delivery today, tpn and tubing. They went down on her dextrose since she did gain 10 oz in 1 week. As you all know she is moving up on her feeds pretty fast. I bump her feeds up 2 times a week and she tolerated the increase to 14cc cont on monday so friday I iwll bump her to 15cc. Its so great to see her thirving and getting better. She has come a long way from where she started but I always knew she could prove everyone wrong. It was just a matter of time...

moved on up

... to 14ccs, so far so good. I bumped her feeds and lets just see what happens. She gaines 10 oz in 1 week which is way too much so lets see if they alter her TPN, we will not be going to clinic untill june 23 which we will also see the surgeon and make plans for surgery. Adriana is fighting a ciold, which she does not yet have but is either getting or fighting it off. She only has a cough and of course runny nose, ugh I know she will get better soon. I am still waiting for radiology to call us and set up a appo for her upper GI but no call just yet. I guess they might just be booked or something. Well Adriana was baptised on Saturday and she had a party. She had fun and got to see a lot of kids which she just loves of course. Lets see how the 14ccs go and I will have the rsults later,......