up to 16ccs

15ccs went well of course she did come up a little but nothign drastically within the normal range. Adriana is now up to 16ccs and so far so good, I wander how far she will get on her feeds? Anyways nothing new with her all is going good. No news is good news better than bad news right? She of course is doing new things daily and just realized she can yell. She hollers all day for no reason at times but she seems like she is dying to talk and cant just yet. She can say mama and papa and that it but she can yell your ears off. She thinks its ok to yell at just about any place, wherever she feels like it. It better to not even tell her anything because if you tell her no she will do it worse.

increase feeds...

Adriana's feeds went up today in the am, I will finish at 5am tomm morning. So far so good, it does seem like she is putting out a little more but I have to wait until the 24 hours are over to really know for sure. Her output might just slow down during the night like it usually always does. She puts out more in the day and less at night. June 23rd we will be seeing her GI doctor and we also have 2 other appoi that day. We will have our consultation with the surgeon regarding a gt tube and also a upper GI studdy that day. Adriana has a long day ahead of her, lets just hope we get good news for every appo. Hopefully we will cycle Adriana longer than just 4 hours that she is being cycled right now. Lets see how that goes, as for her upper GI study she had one way back, I am not sure when exactly but I was told it showed that the ink reached her bag in 15 minutes, I dont think that is what it will show this time. Lets just see as for her feeds she is up to 15ccs and so far so good, when we see her GI doctor if all goes good she should be up to 18ccs. Here are some pics of her today.....


Always wants to yank the camera from me


You say "Bravo" and she begins to clap


no comment


Cheese


She likes her fingers


Just Adriana being curiouse

Picture fun!!!

Mommy and Adriana

delivery

We got our new delivery today, tpn and tubing. They went down on her dextrose since she did gain 10 oz in 1 week. As you all know she is moving up on her feeds pretty fast. I bump her feeds up 2 times a week and she tolerated the increase to 14cc cont on monday so friday I iwll bump her to 15cc. Its so great to see her thirving and getting better. She has come a long way from where she started but I always knew she could prove everyone wrong. It was just a matter of time...

moved on up

... to 14ccs, so far so good. I bumped her feeds and lets just see what happens. She gaines 10 oz in 1 week which is way too much so lets see if they alter her TPN, we will not be going to clinic untill june 23 which we will also see the surgeon and make plans for surgery. Adriana is fighting a ciold, which she does not yet have but is either getting or fighting it off. She only has a cough and of course runny nose, ugh I know she will get better soon. I am still waiting for radiology to call us and set up a appo for her upper GI but no call just yet. I guess they might just be booked or something. Well Adriana was baptised on Saturday and she had a party. She had fun and got to see a lot of kids which she just loves of course. Lets see how the 14ccs go and I will have the rsults later,......

gastric emptying and feeds advance

We got the results back for Adriana's gastric emptying, its NORMAL. Normal is not a really a word for her since nothing about her is normal but I was told the gastric test showed that everything is working. In a hour she showed nothing in the stomach meaning it does what it should do. The last test they did was way back in october and it showed no movement in 3 hours I believe. That was why she was not able to tolerate her feeds, I guess now I know. Well she is doing basiaclly amazing and seems like she might be getting a little cold. She has been coughing the past 2 night and a little ocngested here and there but hopefully she fights it off and doesnt get sick. She needs to be well for this saturday which is her baptism and her big party. Well we will have a upper GI done as well and lets just see what that shoes. Hopefully it also shows a big inprovement like this exam. She has come a long way and is a amazing little girl, I always knew she was capable of more than the doctors credited her for. She also gained 10oz in 1 week so they might also alter her tpn or lets wait and see. She is absorbing all of her feeds and is at 12 so far but tonight in the am I iwll bump her to 13 lets see how she handles that. Shes been a trooper through all of this and has plenty of things to show off, includeing her broviac, iliostomy, and a NG for now. People do stare at her especially kids and I also get a few adults that just cant take there eyes off of her even if you look at them. Weird huh? I guess not it's something Im use to the only thing that bugs me is they look at her as she were from another planet. Anyways lets see how her feeds go.

tolerating

....her feeds, so far she is doing good with the food increase to 12, I still do not have the total for the 24 hours but I am sure she will be just fine.