Reaching the end of the month already..it came and went fast. Adriana is doing good just being her crazy self of course. She loves to get into just about everything you let her get into. I started her on Pectin 1 week ago, the ingredients were 12ml of pectin and 500ml well 495 ml of formula. She started to have a little more out in her output but within a few days it settled back down. I did not notice a change in her output, it was not any different nor did it have more of a form since she is liquid y. I then asked if we can go up on her dose, maybe it wasn't strong or enough and I bumped her Pectin to 15ml now and seems to be doing fine still no change in output concentration. I did bump her feeds to 22 a few days ago but her output went up to 450 which is more than the 350 they wanted to see. I bumped her back down and just bumped her nack up to 22 and she is doing fine, I dont think she will be passing the 350 mark this time.

Adriana is doing a lot of babbling, believe me if you talk to her she will answer you in her own language which I dont seem to understand. Only she knows what she is saying of course....she is getting much bigger and brighter each day. She is now weighing in a little over 23 pounds and I am not exactly sure how long.We bought her 2 pjs yesterday one Dora and the other Spongebob square pants she was so excited. I put them both out in fron of her and asked her which one she wanted to wear and she choose the Dora bottoms and Spongebob top, so she wore that to sleep last night. She was so excited that she stared at her pjs and giggled, she knew who they were. She now does not lay flat in her crib, she sits when you are not looking and turns herself on her tumm in crawling position. From there she does not know what to do so she starts to scream...silly her of course. She lifts up the bumpers in her crib and says mama and papa because our bed is right in front of her crib so she can see us if she wants to.Adrianas feeds are now up to 20ccs cont and she seems to be tolerating it so far, tomm we have a GI appt in Stanford lets see what they say. As for her skin her ostomy bags has healed. She has no more raw skin or anything like that which is also great we sampled a lot of ostomy bags and have finally found some that work great for her active self. They are bigger than the newborn ones I am use to putting on her but she is too active so they just dont cut it any more.Adriana is getting bigger its just a normal part of life. She cannot stay still anymore she just wants to go and is very talkative.She is doing good nothing new with her just being her.

Adriana is doing good, it has been a very long week, with nothing but runny bags and very raw skin. Last week her skin was so raw that her bags would not even stick to her skin. I tried not bagging her and catching her output in a diaper which just made things worse. So much for that, I also tried letting her skin dry and nothing worked. I tried just about everything with her and nothing worked...It was a very long and exhausting week. This week is getting better and her bags are sticking much more and staying on much longer to give the skin enough time to heal. She still has raw skin but it seems to be getting better.As for everything else is all the same, she is still running her feeds well I bumped her to 19cc cont.She is putting out a little more than before but that is always normal with her. As for the good news Is I realized that when I stopped Adriana's feeds she got hungry and accepted the food I gave her. I gave her some fruit for her to taste of course she did not eat it but she did open her mouth every time I offered it to her. That just made me that much more happy. I think things are starting to look better for us.It was about time

It has been a while.... well we are all doing well Adriana is doing good.Aug has been a very busy month for her, she had a lot of hospital admits this last month. She was in with a line infection for a week then back to check gtube placement. Before that she was in for a week since she had just had her gtube placed. So far so good right now, yesterday she finally got her mickey placed. It beautiful compared to her high profile mic...not as cute. I will post some pictures of it... Adriana is now down to 16 hours on her TPN and 12 on omegaven. She is growing really fast and looks great, she is advancing and every day has something new for me to see. I will bump Adriana to 18ccs on her feeds today, that is where she was before surgery.. we finally made it. Now we will continue to advance and see how she does with more than 18, hopefully she does well. I cant wait untill we can start her bolus feeds, she will be line free during the day at times, wow How I would love to have my daughter line free. The smallest things can make a person very happy...Adriana is also starting to drink water...I will give her some drops on her lips and she will suck them in, as for some ice cream which she only takes from her dad. She does not crawl yet but will just rock and really just wants to go....she does stand but not yet walk or cruise, she is scared to.Adriana has been doing great and she has come a long ways.. from now being able to be cycled from her TPN running 24 hours to now 16 hours and not being able to tolerate 1cc to 18ccs....my true miracle.